Baby Braden Petska

Friday, September 15, 2006

Friday's News

Hello,
Well, it looks as if Braden will be getting a room now all to himself. We just said good-bye to his neighbor that shared a room with us this past week. Although we are very happy for Samuel and his parents that they are at home now, it was a little sad to see them leave. We were finally able to connect with a family that was in a similar situation as us. It was so nice to be able to share our story as well as understanding their frustrations, worries, and progress each day.

As Rich mentioned in the last blog, Braden has significant reflux now. It's such a catch 22. Obviously anyone would gag and reflux if a tube kept that sphincter muscle open at the end of your esophagus. BUT, without the feeding tube, Braden wouldn't get enought fluid, etc. Yesterday, I hit a wall....there were so many people in and out, offering advice, trying to tell us how to better feed Braden, etc. Just when you think there's not one more person you could possibly meet, three more people come in and introduce themselves. Names? I can't even remember his nurse's name half of the time. Would this be considered maxed out? I still have very positive thoughts about everything, but some days are a little more frustrating than others. Rich and I took a break tonight and we're going to go fetch some Chinese food (and maybe even a beer)....some of the smallest things can be the greatest treasures :-)

We will probably post sometime tomorrow to update you all on the feeding scenario. During his last feed, he didn't puke at all....we're hoping he's handling everything better now.

Much love,
Steph

6 Comments:

Anonymous Anonymous said...

Steph and Rich- I sound like a broken record but it is true...we will continue to pray for strength and endurance for the two of you, especially during these frustrating setbacks when you need it the most and we will, as always, pray that Braden continues to improve and make progress. Hope the two of you did get to spend some time away from the hospital environment and had at least a beer or two, as that is important for you both individually, as a couple and for you to have strength and perserverance for your precious son. Hang in there, we're thinking of you all. Love, The Vosters Family

9:05 PM  
Anonymous Anonymous said...

Hi Steph and Rich - just wanted you to know that you and your little one are in my thoughts every day. I'm glad to hear you took a "time out"! You need them as parents, even when you're not going through all of this with Braden. It gives you time to breathe and gather strength. You know he's in good hands when you're away for a bit. All three of you have amazing strength. Don't worry about those "walls" you hit - they don't last for long and that's normal too. My love to all of you! Cousin Bonnie

7:05 AM  
Blogger Cara Rybarik said...

Hang in there... yummy lettuce wraps are only minutes away!
You are an incredible Mommy!
I love ya Bud,
Cara

11:14 AM  
Anonymous Anonymous said...

Steph and Rich---
It sounds like Braden and Evan have something in common...I just picked up some Zantac for Evan on Tuesday! Poor little guys:( They can be PUKE MONSTERS together! Hang in there you guys!
Love,
Kory, Lisa & Evan

P.S. It is a good thing that I didn't come up with Kory--I had a major cold by Saturday night:(

1:13 PM  
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1:47 PM  

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