Saturday Update
Well, it seems that the mystery is somewhat solved as to why Braden has been having some feeding issues. Dr. G. ordered an X-ray of his belly last night and the film showed signs of "Pyloric Stenosis." This is when the passage between the stomach and small bowel (pylorus) becomes narrower to the point where nothing can pass through the stomach to the intestinal area. Surgery is the only thing that can correct this. An ultrasound was ordered this morning to make sure that this is what it was/wasn't. The ultrasound showed that it was NOT Pyloric Stenosis, but that the pylorus muscle was inflamed. They're not quite sure as to why this occurred, but they're going to keep a close eye on him and see how he tolerates his feeds. They decided to just give him straight breast milk (yes, I'm still vigorously pumping) without any formula fortification, and they've also stopped giving him his daily 1/4 aspirin.....just a few things to give his gut a little relief. He was just fed a little bit ago and he took 42 CCs....they're starting out slow and will work up to the amount he was eating a few days ago. SO, it looks like we'll be here for a few days. Yes, there is relief....it wasn't anything with his heart and there is a "diagnosis." We will be asking many questions though.....could this happen again? what are the possible causes, etc?
We will continue to post over weekend. Thank you for your prayers and positive thoughts.
Love,
Steph
3 Comments:
After all of this, you two are going to have to change professions! I know it must have been hard to leave home once you got there, but you're in a good place and you are getting some answers. Steph - keep on pumpin' - it's the best thing Baby Braden can have! My love to all three of you - you are close by in my thoughts. Love, Cousin Bonnie
UGH! Not back again so soon....Sorry to hear of this little set-back... Dr. Nancy will get him "right" she is so amazing....our prayers are always with her as she is such as special gift to these little HLHS guys. Take care and hopefully you will be back home again before you know it....
Tammy Tomomitsu
Oh man, It seems like the happiness has turned into tears but we will all keep praying for our "little man"..Stupid Question?? Is this something to honestly "worry" about or is it something that is common with babies? I guess I am asking cause the name doesn't sound familiar..Take care of yourself and stay strong, I wish I could somehow send a hug to all of you..Love ya, Sara
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