Friday Evening
Hello,
Braden is resting comfortably before his 7:00 feeding. He took a little over an ounce at his 4:00 feeding. The plan for us is this: if Braden continues to progress with his eating, they're looking at pulling his ng tube as early as the beginning of next week. He needs to eat at least 1/2 of his daily intake orally before they will take out the feeding tube. He's been eating half at times, but not consistantly. Once they take out the feeding tube, he needs to eat on his own for 2-3 days before they discuss letting us take him home. They monitor this entire weening process pretty closely, measuring and documenting everything he eats and weighing him everyday to make sure he's gaining weight. We could look at going home in a week or maybe longer....it all depends on Braden :-) With the whole extubation process, we've definitely learned the value of patience. We are pleased at how well he's doing so far with his feedings, and so are his caretakers. We know he will continue to amaze us with his progress.
He's only on a titch of oxygen through his little nose canula. They did try him on just room air, but he's not quite ready for that yet. They will continue to try each day. They will pull the heart lines that are attached to his heart (these were placed in after surgery just in case they needed to "jump" start his heart) tonight or tomorrow. They will also look at pulling out his PICC (sp?) line on Monday. Little by little we see less and less wires.....this makes us VERY happy!!!!!!
Thank you for continuing to pray for us and Braden's progress. We will continue to keep you posted over the weekend.
Love,
Steph
4 Comments:
Hi Steph and Rich- It's wonderful to hear that things are going well. I don't know about anybody else but I could use more pictures of the little guy-especially now that the tubes and all are coming out! Glad you are on the 4th floor- Let me know if you need visitors! I'll be there in 45 minutes-
Love, Sarah
Steph and Rich,
Karen (Dr. Stankevych's office) told me she got to see Braden while she was taking her little guy to Childrens for a asthma problem. She said he is one of the cutest babies she's ever seen and that you were doing great. What a strong and wonderful mother he has. Hope he makes it home soon.
Caroline (Dr. Stankevych's Office)
Good Morning, Steph, Rich and Baby Braden! I just saw the family picture from the other day - what a beautiful sight! I look forward to seeing many more and then the "real thing" on my next trip to the UP! Much love and prayers to you! Love, Cousin Bonnie
hello new friends!
I just caught up with the last few days since I talked to you. Congrats on that faboulus fourth floor move! The nurses there are super sweet tell them their HLHS buddy Zach says hello.....I hope the feds contiune to go well..truley that is his main goal right now is to EAT!!! He sure is a cutey I bet he is making lots of girlfriends with those nurses! Our prayers are with you and Braden as you learn all about the "the book" you will take home for monitoring. Know that your not alone in this.....there are lots of us who have been in these shoes your walking in...I know what your feeling.....also know that even though these boys have "half a heart" they love with the biggest hearts ever! Take care I will give you a call this weekend.
your new HLHS friends
Tammy Tomomitsu and family
Calvin, Nicole, Zach, and Cj
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